My mom has ocular amyloidosis. She is almost completely blind. Does anyone have suggestions for where to look for more specialized care and treatment? Any advice would be greatly appreciated.
I also have vision problems with Attr-wt. Iām curious about how they diagnosed ocular amyloid.
If you are looking for help with her visual deficits most states have a division of the vocational rehab department that offers gait retraining, as well as adaptive equipment to assist with mobility as well as reading (large print and audio books).
Have her go to the Cleveland Clinic Amyloidosis Clinic. https://my.clevelandclinic.org/departments/canc...
I live in Charlottesville, VA, but my mom lives in Fostoria, OH (outside of Toledo)
Andrea, where do you live?