Ocular Amyloidosis Treatment | MyAmyloidosisTeam

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Ocular Amyloidosis Treatment
A MyAmyloidosisTeam Member asked a question šŸ’­

My mom has ocular amyloidosis. She is almost completely blind. Does anyone have suggestions for where to look for more specialized care and treatment? Any advice would be greatly appreciated.

posted July 4, 2022
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A MyAmyloidosisTeam Member

I also have vision problems with Attr-wt. Iā€™m curious about how they diagnosed ocular amyloid.

posted January 14, 2023
A MyAmyloidosisTeam Member

If you are looking for help with her visual deficits most states have a division of the vocational rehab department that offers gait retraining, as well as adaptive equipment to assist with mobility as well as reading (large print and audio books).

posted November 11, 2022
A MyAmyloidosisTeam Member

Have her go to the Cleveland Clinic Amyloidosis Clinic. https://my.clevelandclinic.org/departments/canc...

posted October 22, 2022
A MyAmyloidosisTeam Member

I live in Charlottesville, VA, but my mom lives in Fostoria, OH (outside of Toledo)

posted July 10, 2022
A MyAmyloidosisTeam Member

Andrea, where do you live?

posted July 10, 2022

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