I’ve tried the sitting on the edge of the bed and waiting or waiting when I stand up from sitting. I’ve lowered my midodrine to 10 15 and 10. I really don’t want to increase it again. My cardiologist is actually trying to get me off of it. I was on 60 mg a day we’re trying to taper it down. I was doing well but now my bp is running low again
Sigh… prayers to you both 🙏❤️
My brother is 85 years old and was diagnosed a few months ago. He has been told there is nothing to be done. He is unaware of any underlying illness that may have caused this.
Thanks Lola3. I’ll give him that info.
Is Cerebral Amyloid Angiopathy the same as one of the treatable forms of Amyloid discussed here?
Btw your kitty kat is very cute! I’m sure they provide a lot of comfort as does mine!
Good response, Loise. My comment about buying stock was a 'tongue in cheek' comment. I have been investing for 66 years and have stayed away from Big Pharma due to their volatility and generally… read more
It also feels like my shoulders and chest are tight. Sometimes I find myself saying it feels like I’ve been hit by a bus!
Sorry to hear of your muscle discomfort, I hope it subsides. I am now 1 yr past my SCT, I do suffer from attacks of severe muscle & tendon spasms/seizures, (as opposed to chronic muscle… read more
I agree hopefully sooner.
Thans for the info
Instructions to ChatGPT: Act as if you were a cardiologist and i'm a 76 year old male patient with ATTR wild type cardiac amyloidosis. What exercise regimen would you advice? Should I life heavy weights?
Response ffrom ChatGPT:
As a cardiologist, I would advise you to approach exercise with caution due to your condition of ATTR wild-type cardiac amyloidosis. It is essential to prioritize your heart health and prevent any excessive strain or potential complications.
Given the nature of… read more
But I have spent time at the gym today and feel a little tired and now my dear Lady wants me to shampoo 2 carpets . Why not .. never complain as there is always something just around the corner that is going to get ya ...🥰
Oh Len all you need is Heart Kidney, Bladder, Gastro Intestinal Tract and Nerves involvement. And wherever else this stuff congregates
The kidneys showing improvement so is hopefully the heart but not… read more
My knees elbows are bent and can’t straighten. My fingers can no longer make a fist
Not that I know of.
Just curious ... Is Amvuttra (Vutrisiran) the same as OnPattro (Patisiran) or in the same category?
My husband has had no copay with Amvuttra .Analym Assist has covered the cost