Questions & Answers

My cardiologist told me my cardiac Amyloidosis has no cure. This nasty protein made by my liver will keep squeezing on my organs. Try getting into
Clinical Trials! That’s where the best hope is!

Have same problem so keen to hear any ideas

I have wild type stage II cardiac amyloidosis and stage 3B advanced heart failure. I had no side effects from Tafamidis but I don't know if I am seeing any benefit from it. My symptoms seem to be… read more

My cost is $65.00 per month. It was difficult to get approved. I only have Medicare part A, my primary is Blue Cross , Blue Shield under my deceased husband retirement plan. Keep trying… read more

Please check your Medicare benefits with whoever is your agent or directly with Medicare.

I live in Charlottesville, VA, but my mom lives in Fostoria, OH (outside of Toledo)

I have inner air damage because my right air constantly bleeds. However I'm not aware that it is caused by amyloidoses and no one has ever told me or in fact investigated it. Perhaps other people… read more

Well you are lucky to be around and answering our e mails. So thank goodness for that. what were your symptoms when 1st diagnosed and when?

I get weekly immune therapy thus I’m pretty protected. But still am very cautious. I do have 2 Pfizer shots (made no antibodies) they come weekly in HIZENTRA!