Hubby will be caregiver. Any helpful tips? Hubby doesn’t do housekeeper thing. We will be staying close to the H as I will be an outpatient also considered a low threshold patient . We will get a place with a kitchenette for sure . I’ll bring frozen low salt soups from home. Does anyone that has gone through this have any suggestions or helpful tips? Thank you 😊
Thank you unfortunately I won’t be staying in the H as they only do outpatient for this. Unless I am having any issues that is. We will get an Air Band B close to the H. Thank you for your well… read more
What could be the reason of regular fever in this case?
Thank You . Hope this med works well!
I take famotidine and Iberogast.
I know we have a resource link on our site but I thought I would share the link below. It is a link to a 2019 medical abstract (PDFformat) mainly focused on AL Amyloidosis (may be too detailed for some perhaps?) However I found it interesting due to the detail (Google helps with clarifying medical terms)
This link verifies much of my journey with AL amyloidosis and helps me understand the blood and urine test results in detail, initial diagnosis, and ongoing prognosis. It also makes me… read more
Is it called Primary Cutaneous Amyloidosis
I have AL Amyloidosis. A different type. Must say tho that my skin does get itchy and aggravated. Have a good day.
I have been taking 40 mg of Dexamethasone once a wk with my 2 chemo drugs, MYBORPRE regime. Has anyone discovered a good sleeping drug that counters the effects of the steroid at the day 1/2 mark of taking the steroid? I can only seem to get 4/41/2 hrs of sleep at a time using zoplicone 5mg or Benadryl 50mg (not taken together) and find it hard to fall back to sleep once I’ve woken. I walk daily and watch what I eat including leaving 3 plus hrs between eating dinner and bedtime.
Happy New Year to you as well. I've not used dummies for some time. I take a prescription sleep drug. It's 30mg of Temazepam. Extremely effective especially if limited to the nights you take the Dex… read more
After my prostate cancer diagnosis 5 years ago I had many people respond by thanking me for sharing info and advocating early testing.
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