My husband was taken off toporol after years of taking it and amlodipine to control his blood pressure. He is now taking Lisinopril and doxazosin and his blood pressure has steadily increased even though the doctor has increased the meds.
Not taking any BP meds. Sorry I cannot help. Out of my wheelhouse.
Wild type of Amyloidosis. How long have you had it?
Are you on Vyndamax? How long taking Vyndamax? Any prognosis from your doctors?
I was diagnosed in October’23, 1st stage. Been on Vyndamax since mid November. Any help appreciated.
I was diagnosed with wild type last year
Been ln vyndamax for about 6 months. Been doing better. No side effects. I was in stage 2.
It is back worse than ever. What is the mechanism of Amyloidosis that causes carpal tunnel why does surgery help temporarily and why are second surgeries usually not successful? My CT impacts the quality of life certainly more than the heart issues at this stage of my disease. thanks, Steve
I cannot make a commitment to attend at this time. It is a grand idea and if the conflicting situation is postponed i then will let you know. Until things change it will be a no for us. Thanks.