Quick Links
About MyAmyloidosisTeam
Powered By
Please tell me your thoughts
Increased kappa free light chains and an increased kappa/lambda ratio may be seen with plasma cell disorders that produce excess monoclonal kappa light chains.
Microscopic exam/diagnosis:
Kappa Lt Chain, Ser. 32.7 High 3.3-19.4
Lambda Lt Chain, Ser (Phone number can only be seen by MyAmyloidosisTeam users).3
Kappa/Lambda, Ser. 1.89 High 0.26-1.65
LEFT ABDOMINAL WALL FAT PAD (EXCISION)
-… read more
To get even with me the VA diagnosed me by the psychologist Madison McKensie to have the following placed in file
Schizotypal Personality Disorder
and
Somatic Syptom Disorder
The Staff at the VA said… read more
Not me!
Joel
Is Onpattro treatment for wild type Amyloidosis?
Paula, that's the way it works for me. Since I've been back on straight Medicare and CHAMP/VA (Tricare) everything has been working fine with OnPattro.
I am a former Marine that spent about 1 year at Camp LeJuene and I am constantly bombarded by ads (and phone calls) regarding the exposure to toxins at the base. Interesting that there are many illnesses listed but NOT Amyloidosis. Most notably Multiple Myoloma, a "direct cousin" as well as other blood & marrow disorders. Why is this?
Because some of it came from the vaccine that’s why and no one will change my mind it does not run in my family at all no one has it I have no siblings and like my diagnosis should of never of gotten… read more
This happened about the same time that the muscle between thumb and forefinger disappeared overnight. On both hands.
I'm not complaining about the feel of extra cushioning but it is as strange as my now thickened tongue.
Do some research on oral amyloidosis.
Dear Mr. Vern - staying back in New Delhi ,India and couldn't go to Seattle. The treatment regimens for AL Amyloidosis seem almost similar across the continents. The Doctors tailor the treatment on… read more
My husband has Al Amyloidosis
I haven't had much problem swallowing. Sometimes I have indigestion. But l have noticed for about 2 weeks my voice sounds like it's changing, like a 12 year old boy. Cracking and stuff. I'm a 70… read more
I have been given an expiration year, but my twin pre school great grandchildren owes me money for diapers and formulas. So l'm not going ANY WHERE until I get my money. I just want my money from… read more
I agree also that the route I had to go in Ga. SSDI will back pay 24 months, I was Diagnose at age 61 Disabled with Limitations still trying work for Insurance benefits was Denied. With Attorney age… read more
My husband was diagnosed with AL Amyloidosis in November 2023. I started seeing changes in him going back to about 2017-18
He’s always had yearly physicals that were normal, so I just thought maybe he’s getting older. Looking back I’m wondering if it’s was the beginning of what is now an advanced stage of AL Amyloidosis. Any thoughts are greatly appreciated!
I believe we carry the disease lo g before it is diagnosed. The way mist diseases go, they lie recessive for years and by the time they show up they begin to start giving us trouble. I was having… read more
