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Top 10 Search Results for "how does amyloidosis affect the skin"

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I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs
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calf and hamstring muscles severe pain when standing or trying to walk

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Foods To Avoid With Amyloidosis Read Article...
A MyAmyloidosisTeam Member

thanks for your comments Judi how are you doin? What kind of amyloidosis do you have do you take Vydamax? Do you have any skin issues from amyloidosis.Is the medicine called Requip?RX did you get it… read more

Will Acoramidis Replace Tafamidis If Approved In The US? Will We Have A Choice?
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What's The New Medication For Amyloidosis, I'm Currently On Vyndamax. Any Information Appreciated, Thanks! Keep The Faith ☮️🙏
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A MyAmyloidosisTeam Member

Thanks Tee for your reply much appreciated

Can Amyloidosis Be Diagnosed Only By Heart Screening ? Or You Need Blood Tests To Be Sure ?
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A MyAmyloidosisTeam Member

PYP results – quote from ASNC Practice Points, cited in 2022
“While grade 2-3 or H/CL >1.5 uptake is strongly suggestive of TTR amyloidosis, any degree of 99mTc-PYP uptake can also be seen in… read more

Trial NI0006 On ATTRwt Drug To Remove Amloid Fibrlis From Heart. Will This Remove Amloid From Muscles, Nerves And Spine Also?
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I have minor damage to heart but lost unexplained strength in left leg.

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A MyAmyloidosisTeam Member

Abstract
Background: Transthyretin amyloid (ATTR) cardiomyopathy is a progressive and fatal disease caused by misfolded transthyretin. Despite advances in slowing disease progression, there is no… read more

Was Age Of Onset Pretty Consistent In Hattr (familial) Type ?
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A MyAmyloidosisTeam Member

I have 3 siblings and they all have hTTR . My brother had a heart transplant, My other brothers are on Vyndemax. I am on Onpattro. This disease is not a good one. Make sure you have a doctor who can… read more

Anyone Know Where Acoramidis May Be Approved And If They Work Better Than Tafamids?
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A MyAmyloidosisTeam Member

Thanks for adding the update Joel! Here is the latest press release that shows November 29 as the PDUFA action date. https://investor.bridgebio.com/news-releases/ne...

Why Are U Posted Articles With A Date Of 2021??
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Does Amyloidosis Cause Joint Pain? Read Article...
A MyAmyloidosisTeam Member

Let’s hope the administrator of this site pays attention. This is about the 3rd time I complained about old 2021 news posted with Dr Levine as author. There are too many more current treatments and… read more

Organ Specific Primary Amyloidosis Can You Explain This Condition?
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A MyAmyloidosisTeam Member

I am suffering from primary Amyloidisis affected on kideny filtration so creatine increased to @8

Does Anyone Else Have Balance Issues?
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My husband who was diagnosed about a year ago, but who has had symptoms of CATTR for +12years has severe balance issues. Originally they were blamed on vestibular neuritis, but seem to worsen ever more frequently with "bouts" of imbalance and falls. Sometimes there is LOC, other times he is just soooo tired that he falls down. Drs seem to just shake their heads and seem to imply it is a separate issue
Has anyone else ever had inner ear nerve damage attributed to the amyloidosis?

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A MyAmyloidosisTeam Member

I had a stroke in Cerebellum that I thought was cause of balance issues ( don’t know when), but I think it may be related. Had gotten worse lately. I have CM ATTR so it may have triggered the stroke.