Cardiac Hereditary Amyloidosis | MyAmyloidosisTeam

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Cardiac Hereditary Amyloidosis
A MyAmyloidosisTeam Member asked a question 💭

Who has cATTR? How long since diagnosis? What are your symptoms? what meds have you taken and/or are taking? If you are on onpattro what has it done for you?

posted August 10, 2022
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A MyAmyloidosisTeam Member

You should apply for Pfizer financial aid for Vyndamax. Vyndalink.com is their website.
Medicare Part D will cover a portion of the $20,513 retail cost per 30 day supply. You have to meet a Catastrophic amount of out-of-pocket drug costs which in 2022 is $7,050. Then you pay 5% of retail drug cost. $1,025.66 per month. Not even close to affordable for most people. Apply to Pfizer with help of your doctor.

posted August 11, 2022 (edited)
A MyAmyloidosisTeam Member

My cost is $65.00 per month. It was difficult to get approved. I only have Medicare part A, my primary is Blue Cross , Blue Shield under my deceased husband retirement plan. Keep trying working with your Doctors and Pfizer for the financial aid. I'm on Vyndamax now. Good luck keeping you in my prayers. I dont believe the pharmaceutical companies realize how this is a mandatory drug
for people like us. Good Luck.

posted August 14, 2022
A MyAmyloidosisTeam Member

Beverly and Daniel, you are welcome!

posted August 14, 2022
A MyAmyloidosisTeam Member

Thank you. Costs are impossible for me!

posted August 13, 2022
A MyAmyloidosisTeam Member

Thank you for the information and I will follow up

posted August 13, 2022

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