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A MyAmyloidosisTeam Member asked a question 💭
Olympic Peninsula, WA

My tongue has been swollen for several months. I noticed the inside of my upper lip felt funny a couple of days ago. Now I have a swollen area inside my upper lip and my lower lip. Could this also be amyloid deposits?

March 18, 2023
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Reactions
A MyAmyloidosisTeam Member

She better take some interest. You life and health are on the line. Maybe she should read what DR google says about it.

March 23, 2023
A MyAmyloidosisTeam Member

I don't know but I read on here, some people get that. I have an appt with my nutritionist on Tuesday and will ask her if she knows. I am sorry you are having this problem. Jim

March 19, 2023
A MyAmyloidosisTeam Member

I read that swelling of the tongue is a symptom of cardiac amyloidosis.

March 18, 2023
A MyAmyloidosisTeam Member

She ordered an echo and nuc med stress. One a month out and the other 2 months out. Hopefully my new PCP who read my chart and moved my appt up a week will have something to tell me. She really did not take a lot of interest. She also ordered tests for inflammation, RA, PMR, and Sjögren feeling positive it is not my heart. They were all neg.

March 23, 2023
A MyAmyloidosisTeam Member

Linda,
Your cardiologist should schedule you one and also a Nuclear test.
Jim

March 23, 2023

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