Is This Early Stage? | MyAmyloidosisTeam

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Is This Early Stage?
A MyAmyloidosisTeam Member asked a question 💭

I have an enlarged liver (19cm) and protein in my urine but not showing up in my blood My basic blood work is otherwise normal. I am waiting for my provider to confirm the diagnosis.One year ago I lost 1olbs weight and I have neuropathy in my toes but no other obvious symptoms. Does this sound like early stage amyloidosis?

posted April 6, 2023
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A MyAmyloidosisTeam Member

The protein in your urine may be an early indicator. Glad you caught it. My urologist missed this on my annual visit--noticed it only with hindsight. The timing conflict with amyloidosis is (1) get doctors to acknowledge you have it, and (2) get treatments started early--per several articles, early treatment gives you much better odds for success. Concluding evidence for me was the result of a kidney biopsy. Then it was a big push to get treatments started--my wife and I were pro-active on this.

posted April 8, 2023
A MyAmyloidosisTeam Member

Additional thought to earlier post: With hindsight I can specify when to the week I became infected with AL almyloidisis. In late Sept 2020 my VO2Max started a long dive . VO2Max is available from iPhone/Apple watch combo.

posted April 10, 2023
A MyAmyloidosisTeam Member

I shall thanks Loise

posted April 10, 2023
A MyAmyloidosisTeam Member

Thanks Vern and yes I am being proactive

posted April 8, 2023

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