Does Anyone Have Postural Hypotension? | MyAmyloidosisTeam

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Does Anyone Have Postural Hypotension?
A MyAmyloidosisTeam Member asked a question 💭

I know I need to exercise but I can’t go out by myself. There’s always the potential to pass out. What exercises can you do by yourself at home? It’s very frustrating. I feel so much better when I’m out and moving around. There’s only so many times you can clean your house! 🙄

posted July 18, 2023
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A MyAmyloidosisTeam Member

I take midodrine 10 mg 3x a day. That’s down from 20 mg 3x a day! It’s very slow going trying to wean myself down. The cardiologist says our goal is to get me off of it completely. I hope so. I hate taking all these pills. I wish I had that bp Chris! It seems to be my low bp coincides with the chronic diarrhea. Yesterday was a bad day and my bp was 54/49 🙄

posted July 19, 2023 (edited)
A MyAmyloidosisTeam Member

I wonder if you might be able to do some gentle yoga. There are many poses that are done seated or lying down. And it would have the added benefit of quieting your mind which Lord knows I need! Try to see if you can find a book or video.

posted July 19, 2023
A MyAmyloidosisTeam Member

If you google "seated exercises" ex. https://www.livestrong.com/article/13767450-bes...
This is not a recommendation per se, just an example, it is possible to exercise cautiously. Personally I would discuss this with your doctor who could provide more insight

posted July 18, 2023
A MyAmyloidosisTeam Member

After my husband's last fall and 4 day hospitalization, the docs did prescribe midodine for the orthostatic hypotension. 5mg, 3xs a day and it does seem to be stabilizing his blood pressure. He needs to take it slow and not move without my being close by, but we are hoping it diminishes the imbalance and the frequent falls he takes.

posted July 18, 2023
A MyAmyloidosisTeam Member

I know. I’m sorry, I have the same issue. I just hope I don’t faint and stay close to home

posted July 18, 2023

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