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A MyAmyloidosisTeam Member asked a question 💭
Bozeman, MT

-->>> Question at the bottom.

Hi all. I reached out to everyone I could and managed to get my Dad an immediate (informal) consult with a cardiologist on the board of cardiology at the Swedish chain of hospitals. (He also graduated from Tufts, which I think is a bonus since they have a Center of Excellence there.)

We almost-know my Dad has cardiac involvement (he's had a-fib show up).

We have an informal phone call with the cardiologist in just a few days, and the promise of helping access… read more

October 29, 2023
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A MyAmyloidosisTeam Member

Thank you so much Joel!!! That is really, really helpful information. I'm adding it to the list of things to ask and to make sure to know and do.

October 29, 2023
A MyAmyloidosisTeam Member

I was blessed I guess because my oncologist automatically covered all the tests I would need and why they were important.
If I was starting over I would get the doctor to schedule all the tests I would need immediately and not wait for one test to be completed before scheduling another. If A Cardiac MRI is needed schedule it as soon as possible.
After my first visit with the oncologist I did not see him again till the 1st chemo treatment at which time the treatment plan was explained and all my future visits were scheduled.
I think I saw the cardiac guy after I had had a few chemo treatments but am not sure.
The cardiac guy will be looking for certain markers that are obtained by blood. samples. Get a copy of any blood results and then read up on them on appropriate site. You can probably find some information on this site.
That is all I can think of now.
Be well. Tell Dad to be positive.

October 29, 2023

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