I think I have Al
Do you have wild type?
I’ve been taking Onpattto for 4 years for my neuropathy. It has stopped the progression. It has helped my heart also. My tests show no progression of amyloidosis in my heart for past 5 years.
My doctor wants to add Vyndamax but insurance has denied so we are challenging.
On Vyndamax for 6 months, but have had some progression of neuropathy.
Tom, I don't know yet what type I have,but I have neuropathy pain in my feet. Have you started treatment and how are you feeling about it? d8