Does Anyone With Wild Type Amyloidosis Have Significant Peripheral Neuropathy Like I Do? | MyAmyloidosisTeam

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Does Anyone With Wild Type Amyloidosis Have Significant Peripheral Neuropathy Like I Do?
A MyAmyloidosisTeam Member asked a question 💭
posted December 13, 2023
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A MyAmyloidosisTeam Member

I think I have Al

posted December 13, 2023
A MyAmyloidosisTeam Member

Do you have wild type?

posted December 13, 2023
A MyAmyloidosisTeam Member

I’ve been taking Onpattto for 4 years for my neuropathy. It has stopped the progression. It has helped my heart also. My tests show no progression of amyloidosis in my heart for past 5 years.

My doctor wants to add Vyndamax but insurance has denied so we are challenging.

posted December 13, 2023
A MyAmyloidosisTeam Member

On Vyndamax for 6 months, but have had some progression of neuropathy.

posted December 13, 2023
A MyAmyloidosisTeam Member

Tom, I don't know yet what type I have,but I have neuropathy pain in my feet. Have you started treatment and how are you feeling about it? d8

posted December 13, 2023

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