I drive 4 hrs to Mayo in Jacksonville seeing Cardiologist and Neurologist they are working on it for me I’m right with you a social worker should help her
Your located right by the Mayo Clinic. There has to be a social worker there that can help you navigate this. You really need to get treatment to get the best prognosis.
We were told life expectancy without treatment would be 4-5 years, not an expert but biopsy not always needed to diagnose cardiac amyloidosis
Call you cardiologist and get him to help you with the application for meds.
Have you or your doctor applied for assistance from Pfizer?