Diagnose 1 Year With Cardiac Amyloidosis With No Treatnent At All... Expected Time Alive? | MyAmyloidosisTeam

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Diagnose 1 Year With Cardiac Amyloidosis With No Treatnent At All... Expected Time Alive?
A MyAmyloidosisTeam Member asked a question 💭
posted February 14
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A MyAmyloidosisTeam Member

I drive 4 hrs to Mayo in Jacksonville seeing Cardiologist and Neurologist they are working on it for me I’m right with you a social worker should help her

posted February 15
A MyAmyloidosisTeam Member

Your located right by the Mayo Clinic. There has to be a social worker there that can help you navigate this. You really need to get treatment to get the best prognosis.

posted February 15
A MyAmyloidosisTeam Member

We were told life expectancy without treatment would be 4-5 years, not an expert but biopsy not always needed to diagnose cardiac amyloidosis

posted February 14
A MyAmyloidosisTeam Member

Call you cardiologist and get him to help you with the application for meds.

posted April 7
A MyAmyloidosisTeam Member

Have you or your doctor applied for assistance from Pfizer?

posted February 18

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