Hi everyone. Can you folks tell me how you handle inappetence from AL amyloidosis? My dad is losing weight and I'm wondering how I can help.
First… can he eat? If he can, for me, anything I could eat. The amyloid makes all my food taste like crap but I just power through. I had a nutritionist tell me just put butter, sour cream, peanut butter on your food. Anything fattening. I lost over 50 lbs but I’ve gained 17 back. So I’m still skinny but not underweight. Of course if there is kidney issues you have to be careful with some foods. You should definitely consult a nutritionist.
My husband is weighing quality of life during treatment and whether it's "worth it." Any one else with similar experience?
Anyone else with AL Amyloidosis in their digestive system?.