Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 5, 2024
 · 
Be the first to react
A MyAmyloidosisTeam Member

We are studying this issue right now. We bought the "Amyloidosis Diet Cookbook" online and it was of no use. We're trying to integrate a heart-friendly diet (DASH) with a kidney-friendly diet and many of the foods acceptable or recommended under one are not recommended under the other. Potassium is an issue as is hydration. Once we've come up with a food list and possible recipes, I'll share what we've come to. I have an appointment with a dietician at the VA but it's not until April.

March 8, 2024
A MyAmyloidosisTeam Member

Be careful of your salt intake.

March 5, 2024
A MyAmyloidosisTeam Member

My wife, a talented self-taught dietician has me on a no sugar, no salt, no red meat, no fried food diet. Typical: salmon with corn/on/cob, heavy on salad. Desserts limited to once per week. Then baked chicken breasts or thighs.
Could consider the cookbook: "Eating Well Through Cancer."

March 7, 2024 (edited)
A MyAmyloidosisTeam Member

We have switched our seasonings alot, no salt ones, lots of blends have salt so have to pay attention, make all our own blends for stuff like Tacos, spaghetti, no added salt canned tomatoes, read labels low sodium labels are not always, they are lower but not low, we use unsalted butter, fortunately no diabetes, coronary artery disease or kidney issues for us. TASTE OF home website has some good low sodium recipes, good luck with the journey

March 8, 2024
A MyAmyloidosisTeam Member

Which site MISS Roxanna ? I

March 6, 2024

Related Questions

View All
A MyAmyloidosisTeam Member asked a question 💭
Northern VA