Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 19, 2024
 · 
Reactions
A MyAmyloidosisTeam Member

Cant tell ifgetting it back? Pt didnt help at all:(

March 19, 2024
A MyAmyloidosisTeam Member

Sad, sorry to hear that. What meds/ treatment are you on. I will be starting daratumumab and Revlimid very soon.

March 23, 2024
A MyAmyloidosisTeam Member

Yes. I started losing weight and muscle mass at first and by first round of treatments could totally see it. Finished second round of treatment today and so far been walking more than I have in the past four months. Total 2250 steps so far today. Still getting a little winded but taking it slow.

March 22, 2024
A MyAmyloidosisTeam Member

Is your muscle weakness /pain related to your treatment?

March 22, 2024
A MyAmyloidosisTeam Member

Lots of lost strength and almost no stamina remaining. My doctor said it would take a while but didn't explain further.

March 22, 2024

Related Questions

View All
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In