Did Anyone Lose Muscle Strength And How Did It Take Before You Got It Back? Also To Start Building Muscle Again? | MyAmyloidosisTeam

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Did Anyone Lose Muscle Strength And How Did It Take Before You Got It Back? Also To Start Building Muscle Again?
A MyAmyloidosisTeam Member asked a question 💭
posted March 19
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A MyAmyloidosisTeam Member

Cant tell ifgetting it back? Pt didnt help at all:(

posted March 19
A MyAmyloidosisTeam Member

Sad, sorry to hear that. What meds/ treatment are you on. I will be starting daratumumab and Revlimid very soon.

posted March 23
A MyAmyloidosisTeam Member

Yes. I started losing weight and muscle mass at first and by first round of treatments could totally see it. Finished second round of treatment today and so far been walking more than I have in the past four months. Total 2250 steps so far today. Still getting a little winded but taking it slow.

posted March 22
A MyAmyloidosisTeam Member

Is your muscle weakness /pain related to your treatment?

posted March 22
A MyAmyloidosisTeam Member

Lots of lost strength and almost no stamina remaining. My doctor said it would take a while but didn't explain further.

posted March 22

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