Could You Share Any Dietary Changes And Tips That Have Helped With Amyloidosis? | MyAmyloidosisTeam

Connect with others who understand.

sign up Log in
Resources
About MyAmyloidosisTeam
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Could You Share Any Dietary Changes And Tips That Have Helped With Amyloidosis?
A MyAmyloidosisTeam Member asked a question 💭
posted March 25
•
View reactions
A MyAmyloidosisTeam Member

My Cardiologist told me to stay away from salt and processed foods.

posted March 25
A MyAmyloidosisTeam Member

We are working on a guide right now. It's complicated because what's good for the heart might be bad for the kidneys or liver so it depends on what organs are involved. I'm initially basically cutting out everything that I've always known is bad like salt, sugar, alcohol, etc. The tricky things are trying to maintain a correct balance with potassium and so forth, and not conflict with the meds (no grapefruit). I have an appointment with a nutritionist/dietician in a couple of weeks and I'll post after that.

posted March 25
A MyAmyloidosisTeam Member

It's really best to discuss with your doctor or a nutritionist who has access to your medical needs. Patients with low blood pressure are sometimes told to increase their salt intake, while patients with cardiac problems are told to limit to usually less than 2,000 milligrams per day. Some must restrict their fluid intake while others have no limitations. If you have kidney involvement, you may be told to eat less protein daily so as to not stress your kidneys further. Others need to eat more protein to try and avoid muscle loss. You need to find out what YOUR body needs nutrition wise. What others are doing may actually do you harm! Please talk to your doctor!

posted March 25
A MyAmyloidosisTeam Member

Low salt. Found low salt chicken broth by pacific, low salt in a fish by American. Corn tortillas rather than flour. Added lots of limes lemons and peppers and spices to make them tasty. If nauseated,would have some toast
Also found good zero alcohol beer by athletic. Once heart improved was able to be more lenient with salt but still moderate as everyone should be. Lots of fruit and vegetables. Soft cheeses that had less salt than hard ones.

posted March 25
A MyAmyloidosisTeam Member

Easter dinner😋

posted April 1

Related content

View All
Started 6th Wk Of Chemo. Suddenly Feeling Good. More Energy, Head Not Fuzzy, More Stamina. Any Answers?
A MyAmyloidosisTeam Member asked a question 💭
Info On Pfizer's Patient Support
A MyAmyloidosisTeam Member asked a question 💭
Symptoms Amyloid Peripheral Neuropathy
A MyAmyloidosisTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in