Any Suggestions For Caregiver Burn Out ? On Good Days I Do All I Can Plus,then On Bad Days When I Have To Restthe Guilt,the Blame Is Spoken | MyAmyloidosis

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Any Suggestions For Caregiver Burn Out ? On Good Days I Do All I Can Plus,then On Bad Days When I Have To Restthe Guilt,the Blame Is Spoken
A MyAmyloidosisTeam Member asked a question 💭

Always verbal.Know he is tired and it's hard having to help with house hold when that was never part of ťhe deal before.

posted April 25
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A MyAmyloidosisTeam Member

Judi,
I can feel the distress and stress you are under. I will keep you in my prayers.
Caring Bridge, a website designed to help folks easily communicate health care issues to family and friends recently added a focus on Caregivers. You might find information and support there.
It feels to me like you and your partner could benefit from a compassionate family therapist. If your partner does not attend then you might consider going by yourself. My wife and I have been seeing a family therapist every other week for 30 years and find it immensely helpful to have a wise, kind friend to help us through rough patches.
I believe that caregiving for adults is similar to raising young children - if I don’t take care of myself then my children will suffer.
Please find a way to take care of yourself in whatever ways seem best to you!
Joel

posted April 25
A MyAmyloidosisTeam Member

When committing the vow of marriage the part most people pay title attention to is the "worse" part of "for beter or for worse. Nothing reveals true character more than "worse".
I am truly blessed to have an understanding wife.
Pray
Read Bible
READ OVER AND OVER AND OVER FIRST CORINTHIANS 13.
Read it daily until you can almost say it by heart.
Pray
Read specific scriptures about marrage.
Find and attend regularly a true Bible believing church.

PRACTICE
What it says in 1 Cor 13

posted April 25
A MyAmyloidosisTeam Member

Vern, kudos to you for being proactive and getting your end of life book assembled! It will allay many fears that your wife might have about the future when you pass away. You can also sit down, once the book is somewhat completed, and visit with your wife, and then your four daughters regarding your end of life book. This book will be such a tribute to your wife and daughters as you honor them with this preparation. Vern, again, kudos to you!

posted May 3
A MyAmyloidosisTeam Member

Jim, thanks for your comments on an 'end of life' book. Regardless of when I die I need to and will start the same. Otherwise, what a mess for my four daughters to plow through.

posted May 1
A MyAmyloidosisTeam Member

Judi, about six or seven years ago I created an End of Life book for my wife. The contents include sections on Finance, banks, a, complete list of all the people to call when I passed away, our cremation receipt that we purchased years ago and insurance policies. Judi, this book is profoundly helpful to my wife, Sharon. We go over it about every six months to update the book regarding credit card numbers,, insurance papers, car titles, etc. etc. My wife, Sharon feels this to be so reassuring for her. There are books through eBay or Amazon that have created end of life books you simply fill in the blanks. Just a suggestion. Jim Jones

posted April 26

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