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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Eyes Have Gotten So Much Worse To The Extent That They Are Worse Than Any Other Of The Symptoms.

A MyAmyloidosisTeam Member asked a question 💭
Saint Louis, MO

Worse is the double and triple vision. I also get blurry eyes, and runny eyes. I frequently have to squint to see anything. Anyone had similar experiences? Any suggestions for help? Thanks, Bev H.

May 15, 2024
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A MyAmyloidosisTeam Member

If your taking Amvutra or ompatro, you should be taking Vitamin A supplements because they deplete your vitamin A levels and it affects your vision.All the to you!

May 15, 2024
A MyAmyloidosisTeam Member

5% of TTR is produced in the eyes. 80% in your liver, 15% in your brain's Choroid Plexus.

May 16, 2024
A MyAmyloidosisTeam Member

I wish you well, Beverly. You are in my prayers today. Keep trucking as the old saying goes.

May 16, 2024
A MyAmyloidosisTeam Member

I just read an article sent from "My Amyloidosis Team" about how it can affect your vision.
Last week I saw my opthamologist and he recommended that I have Cataract surgery. My neurologist said there is no reason why I shouldn't. But, I will be have several questions for the opthamologist doing the surgery.

May 15, 2024
A MyAmyloidosisTeam Member

I too am experiencing vision problems. I have ATTRwt and am taking Vyndamax. Worsening double vision, worsening light sensitivity, hard to read books, eyes seem dryer, eyeglass Rx changes every 6-8 months. I have an appointment with a neuro-ophthalmologist next month. Hoping that they know about AATR!

May 16, 2024 (edited)

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