Don't give up! Your symptoms can be managed and you can find ways to enjoy life. Everyone can if they try.

I went out and purchased a walker by my bed also Sara2. What a difference that made! Not sure whether the confidence was a factor but I do not feel unsteady after the first night on the walker by the bed.

Yeah you just have to focus on the positive and not worry to much about the negative affects. I lost a lot of muscle mass due to amyloidos and can't seem to gain any weight so I've been focusing on maintaining the weight I have and not losing anymore.

I find it hard to walk like I used to walk - two miles easily. Now I have aches and pains but I do not whether the torn muscle with a repair is responsible or not. I was surprised that I often take a nap now.

I am.now 80 & I never know if symptoms are due to age or the amyloidosis. Loss of stamina. Fatigue. I try to keep walking my 4 miles. I sstillmanage it but with lots of rest stops & much more slowly.i do t want to give it up