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Which Amyloidosis Symptom Surprised You The Most?

MyAmyloidosisTeam asked a question šŸ’­
San Francisco, CA
August 19, 2024
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A MyAmyloidosisTeam Member

I went out and purchased a walker by my bed also Sara2. What a difference that made! Not sure whether the confidence was a factor but I do not feel unsteady after the first night on the walker by the bed.

August 27, 2024
A MyAmyloidosisTeam Member

Yeah you just have to focus on the positive and not worry to much about the negative affects. I lost a lot of muscle mass due to amyloidos and can't seem to gain any weight so I've been focusing on maintaining the weight I have and not losing anymore.

December 30, 2024
A MyAmyloidosisTeam Member

Don't give up! Your symptoms can be managed and you can find ways to enjoy life. Everyone can if they try.

December 30, 2024
A MyAmyloidosisTeam Member

Edward I use my walker when I walk long distances. I’m up to anywhere from 4K to 6k steps a day now. In April I could even do 600! The walker definitely helps with balance issues

August 27, 2024
A MyAmyloidosisTeam Member

The weight loss, how much muscle strength you lose, the swelling in my legs and the shortness of breath really took me surprise.

August 19, 2024 (edited)

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