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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Saw An Amyloid Specialist And Exhaustively Went Over My Symptoms. He Was Sure I Have Amyloidosis. Tests Show I Do Not. What Can It Be?

A MyAmyloidosisTeam Member asked a question 💭
Glen Gardner, NJ

I’ve been treated for CIDP on IVIG for three years. Symptoms are worsening and match amyloidosis perfectly. Muscle weakness and pain, peripheral neuropathy first in feet and then hands, pain in hands and feet with paralysis, AFib suddenly, COPDas a non-smoker, nausea, acid reflux, constant diharrea, Dupuytrans in feet and hands, Raynaud’s I hands and feet, pains throughout spine, much more.

September 14
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A MyAmyloidosisTeam Member

Amyloidosis can be difficult to diagnose because its symptoms often overlap with those of other conditions. Here are some possibilities:

- Other Health Conditions: Many symptoms of amyloidosis are general and may be associated with a wide range of other health conditions. Your doctor may need to determine if another read more

Amyloidosis can be difficult to diagnose because its symptoms often overlap with those of other conditions. Here are some possibilities:

- Other Health Conditions: Many symptoms of amyloidosis are general and may be associated with a wide range of other health conditions. Your doctor may need to determine if another condition is causing your symptoms or if one condition is worsening the symptoms of another.
- Underdiagnosis: Amyloidosis is thought to be underdiagnosed, so it might be worth seeking a second opinion or further testing.

It's important to continue working with your healthcare provider to explore other potential causes of your symptoms.

 This AI-generated response comes from MyAmyloidosisTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Amyloidosis — The Path to Diagnosis | MyAmyloidosisTeam
Amyloidosis — An Overview | MyAmyloidosisTeam
September 14

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