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Can We Get Updated Resource Material?
Some of the material is from 2021. A lot has advanced since then. Would also like to see new numbers on the overall survival OS rates. We need to know with advanced treatments comes better prognosis.
There’s an increasing amount of literature to search through but I always start with Mayo Clinic.
The AI employed here is producing muddled content — mixing AL and TTR in its answers. Not quite hallucinating, but unreliable.
And that was modified in 2022 🙄 Not everything is solved by AI
Once you obtain a basic understanding of your disease, your best bet is academic journals. If you struggle with statistics and such, there are explainers/primers out there that make it understandable.
AI is very cunning ... be wary 👍
Can We Maybe Get More Reading Material On AL Amyloidosis. New Treatments, New Meds, Diet, Exercise…
Will The Site Be Putting Up Any New Material In The Resources Section? Some Of The Material Is From 2021… Maybe A Little Outdated 🤷🏻♀️
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