Do You Follow A Specific Diet To Help With Amyloidosis?
I'm not following a special diet, just a mix of Chinese, Mediterranean, and Western. I have been avoiding or minimizing sugar and salt for years, so nothing has changed. Alcohol consumption has been sporadic and minimal for years, but I don't abstain. The occasional glass of cider or wine several times a month probably is not going to kill me, but it will make life a little more enjoyable. In the end, something is going to kill me, and it might as well be an occasional pleasant beverage. Better than getting hit by a bus. No sense in dying before I'm dead!š
I think everyone is trying their best! I am grateful for each new day and have been an advocate for health and fitness. I eat very healthy, but portion control could be better. I do enjoy Red Wine because I call it the blood of Christ! My son makes his own and I do indulge on a rare occasion.
After all the wok I put into my health, learning about amyloidosis has been an obstacle for me. I have been going to a Cardiologist since I was 40 for the sole purpose of beating the odds but now, I am right in it!
I do train with resistance (weights) and I make an effort to focus on cardiovascular health as my purpose.
Hope everyone is making progress in beating their Amyloidosis.
We eat lots of wild caught seafood each week Medit. Diet, Italian, French, Greek, etc. zero alcohol low sodium wherever possible.
Low salt is my goal (amount I don't know). I normally look at the labels to determine whether to eat the product. Fish is regularly eaten, though not every day. Low fat meats are the other pleasure. I regularly have fruits and vegetables especially at dinner and lunch. Whiskey or red wine occasionally, a little more than once a year. I was told the most recent test was a turnaround for my heart with my most recent test. My original diagnosis was hereditary Amyloidosis, and I have outlived the person (my mother) who had the same diagnosis, by two years so far. I regularly exercise with manual labor (moved a load of dirt to distribute and seed an area of the lawn - and walking, even though family thinks I should not do the manual labor because of my age. I am presently on Vyndamax (tafamidis) and active whenever possible though I had a swollen right leg recently which hindered my walking.
I do not drink alcohol or smoke. I only use sea salt or pink salt. No bad oils. I eat lots of eggs, fish, and meat. Avocados, pineapple, only real juice no sugar added Mostly cranberry. Lots of protein and very little veggies. Good cheese not the processed kind. I limit carbohydrates and do not use sugar. A fair amount of dark chocolate. The only sugar I have is in some desserts. Dried nuts and fruit. No milk only almond milk. Real yogurt twice a week. I take all the vitamins and amino acids needed a couple of times a week so as not to overdue them. Nattokinase 200mg a day. I eat saturated fats but only from a natural source like Tallow and real butter, olive oil and coconut oil. All of my bloodwork is good and my Doctor says he can not tell I have wild type ATTR by my blood tests. I also get 20 minutes of Sunshine and 20mins of grounding every day.
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