Connect with others who understand.

Sign up Log in
Resources
About MyAmyloidosisTeam
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Amyloidosis What Type Of Amyloidosis Do Yo Have And Are You Aking A Diuretics? Thanks, Steve

A MyAmyloidosisTeam Member asked a question šŸ’­

I am Asking for an informal survey of what type of amyloidosis do you have and are you taking a diuretic. We noticed on this site that there are a lot of diuretic users and I tried my wife's diuretic for a week with an improved urinary flow. However, my heart group took me to the woodshed and urged me not to be experimenting with diuretics. Hence I would appreciate any input you might have especially for wild type ATTR combined with diuretic use.

October 18, 2024
•
View reactions
A MyAmyloidosisTeam Member

I use Jardiance to aid in water removal as per doctors' orders One pill (10mg) every other day.

October 18, 2024 (edited)
A MyAmyloidosisTeam Member

I have AL. No diuretics. I have hypotension so you have to be very careful. They can lower your bp

October 18, 2024
A MyAmyloidosisTeam Member

I have Al Amyloidosis, and I’m currently in the hospital right now having fluid removed but usually I’m on Torsemide 100mg which I take twice a day but last chemo medication made me swell again.

October 21, 2024
A MyAmyloidosisTeam Member

I have wild type ATTR and my cardiologist has me on Aldactone which is a mild diuretic but it also helps my body retain potassium naturally.

October 21, 2024
A MyAmyloidosisTeam Member

Thanks appreciate your wisdom, Steve

October 19, 2024

Related content

View All

I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs

A MyAmyloidosisTeam Member asked a question šŸ’­
Fresno, CA

What Is Best Medication For Treating ATTR Wild Type Amyloidosis?

A MyAmyloidosisTeam Member asked a question šŸ’­

What Medical Facility Has A Team Approach To Amyloidosis Including All The Complications, Neurology, Balance, Gastro, Carpal Tunnel, Etc.

A MyAmyloidosisTeam Member asked a question šŸ’­

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Lock Icon Your privacy is our priority.
Already a Member? Log in