I am eighty-thee and live in beautiful North Vancouver and have four grown children, nine grandchildren and a wonderful supportive wife…….

After several months of various cardiac tests I was diagnosed with wild type amyloidosis in 2023. I was then prescribed Vyndamax (gratefully funded by the Canadian Government) and have been taking it for eight months. My symptoms have not changed ie: weight loss, taste issues, extreme tiredness and occasional flare ups of gout in both feet but I believe my condition has at least been stabilized!
I walk and exercise every day and try to eat a healthy diet avoiding salt, alcohol and red meat.

I have come to humbly accept and realize that life style changes and a positive mental attitude are necessary to maintain the ‘new’ me and it’s limitations! Keep the faith is my new mantra!

Happy New Year to All! 🙏😊

These stories are not only encouraging but they are also all personal triumphs for sure. Although we all still battle ongoing challenges we have shown faith in ourselves and our medical teams and have hope that AI efforts in the medical field will significantly reduce the impacts of all forms of Amyloidosis & maybe even eliminate it.
God bless you all & let’s enjoy every day of this New Year best we can. 🙏

I was diagnosed with AL amyhloidosis January '23 and did my Chemotherapy from end of January to mid-July. I then went monthly with a stomach stick (do not remember the drug) until end of last November. At this point I will have blood work every three months to watch for adverse changes. My list of daily meds has stayed constant, although I have been able to decrease Midodrine and Bumetanide. Recently my cardiologist started Sprinolactone, a new med. My lung fluid still getting drained, but volumes are decreasing. My energy, tracked by timed walk to my mailbox, has significantly increased.. My VO2Max has been slowly creeping up.
The statistics from my blood work are looking good, with Troponin-T still slightly out of range but it has monotonically decreased over the last couple of years. So at this point this guy (me) and my family are openly celebrating. :--)))

I had a SCT and was in remission for 10 years before it returned. I have AL. I wasn’t on any maintenance treatments during that time.

Thank you Susan…..keep moving!