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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 19, 2025
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A MyAmyloidosisTeam Member

Yes. At the beginning of this journey it was really bad, I lost 53 lbs. But now it’s quite manageable. I push through and eat. I don’t enjoy food as much as I used to.

August 19, 2025
MyAmyloidosisTeam

Yes, mouth and throat symptoms are common with amyloidosis. A MyAmyloidosisTeam member shared experiencing similar issues, including soreness and difficulty swallowing. These symptoms can significantly impact eating and sleeping comfort.

Common mouth-related symptoms include
• Pain in the tongue and mouth
• Difficulty Show Full Answer

Yes, mouth and throat symptoms are common with amyloidosis. A MyAmyloidosisTeam member shared experiencing similar issues, including soreness and difficulty swallowing. These symptoms can significantly impact eating and sleeping comfort.

Common mouth-related symptoms include:
• Pain in the tongue and mouth
• Difficulty swallowing
• Coughing
• Dryness and soreness
• Problems with eating and chewing It's important to work with your healthcare team to manage these symptoms. They may recommend:
• Consulting a registered dietitian to adjust food textures
• Working with a speech and language pathologist for swallowing support
• Using special mouth rinses or artificial saliva products
• Getting evaluated by a dentist for oral care management

Don't wait to seek help, as early intervention can help prevent complications and improve your quality of life.

August 19, 2025

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