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Had toe amputated, now the nerve pain in toes is awful and I can't get rid of it. Anyone else have this awful nerve pain? How do you get relief, it is killing me

September 16, 2025
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A MyAmyloidosisTeam Member

HI SHIRLEY, did you checked with your doctors?when you are sitting down start moving the toes excercise, where comfortable shoes.,I don't know if there is socks that can help with circulation, let me know if you feel better.i always try to move my feet even lying down.

September 16, 2025
A MyAmyloidosisTeam Member

Sorry, I have nothing to cure the foot.

September 23, 2025
A MyAmyloidosisTeam Member

Hi Shirley, I can imagine you are scared with all these different symptoms ,don't focus too much on what is going on ,as long as your doctors know about all symptoms, just use your hands to massage your feet,and if possible don't sit down too long.i which I lived near by to massage them for you.God bless.

September 18, 2025
A MyAmyloidosisTeam Member

Thanks for your suggestion about toes. However my cardiologist said no blood flow to toe caused gangrene in toe, that was.amputated.

September 17, 2025
A MyAmyloidosisTeam Member

The drug gabapentin is used often to control nerve pain. Do you have a hematologist or a neurologist? After seeing many of your posts, it is evident you are not getting the correct and necessary care to address your AL amyloidosis. The standard treatment for AL is
Dara CyBorD. Without treatment, your health is going to continue worsening. The progression of the amyloid needs to be stopped with treatment before you can expect to get much, if any relief.

September 16, 2025

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