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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can amyloidosis effect your ears

A MyAmyloidosisTeam Member asked a question 💭
Milton Keynes, UK
September 24, 2025
 · 
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A MyAmyloidosisTeam Member

I think so. My face swelled along the eye brow moved down to my eye and then to my ear! I was hospitalised and administered antibiotics. I had an endoscopy, barium X-ray (can’t remember what it’s called) tube up the nose and into the stomach and a biopsy at the back of the ear. Also in pain as well. So I saw someone from ENT, HAEMATOLOGY & RHEUMATOLOGY none of them knew what was happening, no infection anywhere but swollen glands face and ear. I was in for a week felt very tired but it went. 🤷🏻‍♀️

September 24, 2025
MyAmyloidosisTeam

While the search results don't specifically mention ear involvement, amyloidosis can affect various parts of the body including the nervous system. If amyloid proteins build up in or around the nerves that control hearing and balance, this could potentially impact ear function.

Common symptoms that might be related to Show Full Answer

While the search results don't specifically mention ear involvement, amyloidosis can affect various parts of the body including the nervous system. If amyloid proteins build up in or around the nerves that control hearing and balance, this could potentially impact ear function.

Common symptoms that might be related to ear/balance function in amyloidosis include:
• Dizziness
• Balance problems
• Changes in blood pressure when changing positions (orthostatic hypotension) If you're experiencing ear-related symptoms, it's important to discuss them with your healthcare provider. Since amyloidosis can affect multiple organs and systems in the body, tracking any new symptoms helps ensure proper management of your condition.

September 24, 2025

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