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A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY

Because I have amyloidosis in my GI tract no matter what I do I keep getting UTIs. Any helpful hints for helping with this? It’s really getting annoying!

November 10, 2025
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Answer Summary

Members dealing with recurrent UTIs, especially in the context of amyloidosis, came together to share what has helped them find relief.... Read more

Members dealing with recurrent UTIs, especially in the context of amyloidosis, came together to share what has helped them find relief. Several members offered practical tips including switching to showers instead of baths, taking cranberry pills, using AZO products, and asking a doctor about Hiprex to make urine more acidic, with one member reporting no UTIs in six months after starting it. A recurring theme was the importance of advocating for further testing with your doctor, as one member shared that persistent UTIs led to imaging that ultimately revealed an amyloidosis diagnosis.

A MyAmyloidosisTeam Member

My hematologist prescribed Hibex because I had 4 UTI 's in four months. The idea was to make my urine more acidic! Guess what, I have had a UTI in six months!!!

December 16, 2025 (edited)
A MyAmyloidosisTeam Member

I have and thank goodness no mass!

November 18, 2025
A MyAmyloidosisTeam Member

Theresa,
I am so sorry you are having recurrent UTI’s, they are so painful. Jim does not have that problem, so he is very fortunate. 🙏’s for you!

November 11, 2025
A MyAmyloidosisTeam Member

Good morning,  yes I have had 2 UTI 's in less than 45 days. I an having a nerve block tomorrow and cannot have any antibiotic s so the pharmacist  recommended these red pills....take 2 pills 3 times a day for 3 days then take some cranberry pills I got them at Walgreens  a friend told me to get AZO , but it was more expensive  that the 1 items I got. The AZO is about 45 dollars. First time I went to URGENT CARE  and they gave me an antibiotic  but I am having a nerve block tomorrow and cannot be on any antibiotics. 
Good luck. FLO

Sent from Yahoo Mail on Android

November 11, 2025
A MyAmyloidosisTeam Member

I used to many years ago until I take only showers now and it helped a lot. Went to Urologist this year and he said the same thing that the Team said especially as we get older. Feel for you as they are so uncomfortable. Hang in there!

November 10, 2025

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