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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Subscriber asked a question 💭
November 26, 2025
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A MyAmyloidosisTeam Member

Actually, all the doctors I know are more than happy to test. But more to the point, do you have any symptoms that suggest amyloidosis? And what test are you wanting? PYP? Biopsy of heart?

December 6, 2025
A MyAmyloidosisTeam Member

Maybe go to a different doctor.

December 6, 2025
MyAmyloidosisTeam

Can you pay for testing yourself if your doctor won't order it?

Yes, you can pay out-of-pocket for medical testing if your doctor won't order it, though this makes you a self-pay patient for those services. However, there are some important considerations.

When you're self-pay, you may be able to negotiate the cost with Show Full Answer

Can you pay for testing yourself if your doctor won't order it?

Yes, you can pay out-of-pocket for medical testing if your doctor won't order it, though this makes you a self-pay patient for those services. However, there are some important considerations.

When you're self-pay, you may be able to negotiate the cost with the testing facility beforehand. Hospitals tend to charge the most for diagnostic tests, so consider looking into:

- Stand-alone, independent facilities
- Outpatient testing centers
- Freestanding labs

These alternatives are typically more cost-effective than hospital-based testing.

Before moving forward with self-pay testing, it's worth having a conversation with your doctor about why they don't think testing is necessary. If you still want to proceed, ask the testing facility for their self-pay rates upfront and compare costs between different locations.

Keep in mind that without a doctor's order, you may have limited options for certain specialized tests. Some facilities require a physician's referral regardless of payment method.

November 26, 2025

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