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A MyAmyloidosisTeam Member asked a question 💭
Milton Keynes, UK
January 29
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A MyAmyloidosisTeam Member

On Wainua since April '25, so 10 Injections in. Not sure how much it has helped. For about a 3 or 4 week. This past November December felt a huge difference. Probably had neuropathy for a solid 4 years. So if I had to guess I'd say maybe 10 to 30% improvement? Educated guess, since I've also had 3 non at fault accidents, 2wice rear-ended in Jan/Feb '22, so that's also neuro related as well. Had neck surgery 8/23/23 after A year and a half of constant pain. STILL an issue and constant reoccurring back pain.

So basically I'm injured and I'll.

But from my experience I'd give Wainua a try.

January 29
MyAmyloidosisTeam

How is the Wainua injection performing for people with amyloidosis?

Wainua (eplontersen) is showing positive results for people with hereditary ATTR amyloidosis with polyneuropathy. It was approved by the FDA in 2024 specifically for treating nerve symptoms caused by this type of amyloidosis.

Early studies demonstrate Show Full Answer

How is the Wainua injection performing for people with amyloidosis?

Wainua (eplontersen) is showing positive results for people with hereditary ATTR amyloidosis with polyneuropathy. It was approved by the FDA in 2024 specifically for treating nerve symptoms caused by this type of amyloidosis.

Early studies demonstrate that Wainua improves nerve-related symptoms and slows disease progression. It's given as a monthly injection that people can administer themselves at home, which offers convenience compared to treatments requiring clinic visits.

The medication provides ongoing benefits when used over time. Researchers are currently studying whether it may also help with heart symptoms in the future, which could expand its use.

As a newer gene-silencing therapy, Wainua offers flexibility for people who want to manage their condition without frequent clinic visits. The self-injection format typically takes just three to five minutes to complete.

January 29

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