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A MyAmyloidosisTeam Member asked a question 💭
Las Vegas, NV
March 13
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MyAmyloidosisTeam

Have others been diagnosed with stage 3 kidney disease from amyloidosis?

Yes, stage 3 kidney disease is a recognized complication of amyloidosis, particularly AL amyloidosis. Stage 3 kidney involvement means you have both an estimated glomerular filtration rate (eGFR) below 50 and proteinuria (protein in urine) over 5 Show Full Answer

Have others been diagnosed with stage 3 kidney disease from amyloidosis?

Yes, stage 3 kidney disease is a recognized complication of amyloidosis, particularly AL amyloidosis. Stage 3 kidney involvement means you have both an estimated glomerular filtration rate (eGFR) below 50 and proteinuria (protein in urine) over 5 grams per day.

This staging helps doctors understand your risk level and plan appropriate care. People with stage 3 kidney disease from amyloidosis face a higher risk of needing dialysis compared to earlier stages.

What does this mean for treatment?

If you're at stage 3, your healthcare team will likely:

* Monitor your kidney function more frequently
* Adjust medications to protect your kidneys
* Watch closely for signs of progression
* Discuss potential need for dialysis or other advanced treatments

Your nephrologist plays a key role in managing kidney-related symptoms and slowing damage progression. Early detection of changes allows your care team to adjust treatment and help protect your kidney function over time.

Many people with amyloidosis experience kidney involvement, so you're not alone in facing this challenge.

March 13
A MyAmyloidosisTeam Member

I am sorry Richard. How many years have you been dealing with ATTR Cardiac Wild Form?

May 12
A MyAmyloidosisTeam Member

Sorry Richard. In my prayers and good luck!

March 14
A MyAmyloidosisTeam Member

Yes, in addition to the many other aspects of amaloydosis, the doctors at Mayo have added Stage 3 b kidney disease on my charting. I think they are running out of lines on my report. My fatigue is overwhelming and definitely becoming challenging to sleep, eat, and of course exercise (walking) although I try. March 23 will find me in Mayo for heart caths and possible stints based on findings. Keep up you all, and eat your raspberry donuts. Oh wait, I have lost all sense of taste and smell so for the last month everything tastes like cardboard.

March 13
A MyAmyloidosisTeam Member

My husband has stage 3b also, his kidney function has been as low as 23, now holding in the low 40’s.

March 13

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Milton Keynes, UK

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