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I'm 70, Wild type ATTR CM, Stage
1, on Diflunisal because denied Tafamidis

June 27
 · 
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MyAmyloidosisTeam

Comparing Providence vs. WellCare for ATTR amyloidosis treatment coverage in Portland, Oregon is a great question — and an important one, since ATTR therapies can cost hundreds of thousands of dollars per year.

Unfortunately, specific plan-by-plan comparisons aren't something that can be provided here, as coverage details Show Full Answer

Comparing Providence vs. WellCare for ATTR amyloidosis treatment coverage in Portland, Oregon is a great question — and an important one, since ATTR therapies can cost hundreds of thousands of dollars per year.

Unfortunately, specific plan-by-plan comparisons aren't something that can be provided here, as coverage details change frequently and vary by plan tier. However, here are some key things to look for when comparing both plans:

- Specialty drug formulary — Check if ATTR medications like tafamidis (Vyndaqel or Vyndamax) or other gene-silencing therapies are listed
- Prior authorization requirements — Most insurers require your doctor to prove medical necessity before covering ATTR treatments
- Step therapy rules — Some plans require trying other treatments first
- Out-of-pocket maximums — Critical given the high cost of these medications
- Specialist network — Confirm that amyloidosis specialists in Portland are in-network It's worth noting that Medicare Part D coverage can vary by state — for example, not all states cover Vyndamax, though most cover Vyndaqel. Calling both Providence and WellCare directly to ask about ATTR-specific drug coverage is strongly recommended.

If costs remain a barrier, these assistance programs may help:

- Patient Access Network Amyloidosis Fund — Covers medication and other costs (waitlist currently open)
- National Organization for Rare Disorders (NORD) — Helps with out-of-pocket costs including medications
- Medicare Extra Help / Savings Programs — For seniors needing additional support

A Medicare advisor or social worker familiar with amyloidosis can be incredibly helpful in navigating this.

June 27
A MyAmyloidosisTeam Member

Any information on depleter drug trials update?

June 28
A MyAmyloidosisTeam Member

My husband is seeing Dr Kay at providence in Portland . We really like her and all the nurses we have seen or talked to have been great. You get responses quickly.

July 5
A MyAmyloidosisTeam Member

Laszt I heard is that is was in human trails.

July 2

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