See if you can get vyndaqel. It's 4 times a day dosing. My Rx plan would approve it but not vyndamax. They are the same drug. But I went on amvuttra a week later.
June 30
Unfortunately, specific patient information like who is receiving which medications and with which healthcare provider isn't something that can be shared here — that's private health information. However, the frustration of being denied tafamidis (Vyndamax) is completely understandable, and there are some important things Show Full Answer
Unfortunately, specific patient information like who is receiving which medications and with which healthcare provider isn't something that can be shared here — that's private health information. However, the frustration of being denied tafamidis (Vyndamax) is completely understandable, and there are some important things worth knowing.
Tafamidis is FDA-approved for wild-type ATTR-CM, so a denial doesn't have to be the end of the road. Here are some steps that may help:
- Appeal the denial — Kaiser must tell you why coverage was denied and how to appeal. Your doctor can submit documentation showing tafamidis is medically necessary for your condition.
- Ask your doctor to request prior authorization — This is often a required step before insurance will cover ATTR therapies.
- Contact the manufacturer's Patient Access Coordinators (PACs) — The company that makes tafamidis offers PACs who can help navigate insurance coverage and financial assistance programs.
- Check Medicare/Medicaid coverage — Most states cover Vyndaqel (tafamidis meglumine), even if Vyndamax coverage varies by state. It's also worth noting that diflunisal is sometimes prescribed off-label for amyloidosis, but it works differently than tafamidis and is not FDA-approved specifically for ATTR-CM.
Connecting with other MyAmyloidosisTeam members in the Portland area through the community could be a great way to get real-world insights on local specialists and healthcare experiences.
June 29
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