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A MyAmyloidosisTeam Member asked a question 💭
July 27
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Are you looking to gain weight with amyloidosis, or concerned about unexpected weight gain? Both are worth understanding, since amyloidosis can go in either direction depending on what's happening in the body.

Unintentional Weight Loss (and wanting to gain)

Many people with amyloidosis struggle with weight loss due to Show Full Answer

Are you looking to gain weight with amyloidosis, or concerned about unexpected weight gain? Both are worth understanding, since amyloidosis can go in either direction depending on what's happening in the body.

Unintentional Weight Loss (and wanting to gain)

Many people with amyloidosis struggle with weight loss due to digestive issues, muscle loss, and nutrient absorption problems. As one MyAmyloidosisTeam member shared, they lost over 40 pounds and found stability by working with a nutritionist and eating better over time.

Some helpful strategies include:

- Eating smaller, more frequent meals and snacks throughout the day
- Adding healthy, high-calorie foods where possible
- Working with a dietitian who has experience with chronic conditions
- Asking your doctor for a referral to a physical therapist to help preserve muscle mass Unexpected Weight Gain (fluid-related)

On the flip side, if weight is going *up* unexpectedly, this can be a sign of fluid buildup related to heart involvement. Gaining 2–5 pounds within 24 hours is something to report to a doctor right away.

Key symptoms to watch alongside sudden weight gain include:

- Shortness of breath
- Swelling in the legs or abdomen
- Irregular heartbeat or increased heart rate

Either way, any significant weight changes are worth discussing with a healthcare provider so they can identify the cause and guide next steps.

July 27

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