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Carpel Tunnel connection

A MyAmyloidosisTeam Member asked a question 💭
Erie, PA

I’ve had four bouts of carpel tunnel syndrome with surgery beginning 20 years ago: Both wrists. Nobody knew the connection back then. Even if we’d known of the connection to wild type Amyloidosis there was no treatment then. I also had ankle & shoulder surgery for torn ligaments during those years. I believe it was all connected. The year I was finally diagnosed was the year Pfizer got FDA approval of Vyndamax, which is the drug I I take daily. Does anyone else have a similar history?

August 12
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MyAmyloidosisTeam

What a journey — and the timing of your diagnosis with Vyndamax's approval is remarkable. Your experience is far from unique, and many others in the community share a strikingly similar story.

A MyAmyloidosisTeam member shared, "I have bilateral carpal tunnel and spinal stenosis with my wild-type amyloidosis." Another said Show Full Answer

What a journey — and the timing of your diagnosis with Vyndamax's approval is remarkable. Your experience is far from unique, and many others in the community share a strikingly similar story.

A MyAmyloidosisTeam member shared, "I have bilateral carpal tunnel and spinal stenosis with my wild-type amyloidosis." Another said carpal tunnel had "become a painful way of life," while one member discovered their amyloidosis through a carpal tunnel biopsy. The connection between carpal tunnel, ligament issues, and wild-type amyloidosis is now much better understood. Amyloid deposits can build up in tendons, ligaments, and nerves — which explains why so many people experienced these issues years before their actual diagnosis.

Research now shows that people with bilateral carpal tunnel syndrome are significantly more likely to have amyloidosis, and carpal tunnel symptoms often appear years before heart-related symptoms emerge.

The good news is that awareness has grown enormously, meaning earlier diagnosis is increasingly possible for others today. Your experience is a powerful example of why doctors now take bilateral carpal tunnel seriously as a potential early signal.

August 12

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