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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 3
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MyAmyloidosisTeam

That's a really specific and thoughtful question. When it comes to systemic AL amyloidosis and tongue involvement, the available information focuses on amyloid deposits building up in the soft tissues of the tongue itself, rather than linking tongue symptoms to parathyroid gland involvement.

The organs most commonly Show Full Answer

That's a really specific and thoughtful question. When it comes to systemic AL amyloidosis and tongue involvement, the available information focuses on amyloid deposits building up in the soft tissues of the tongue itself, rather than linking tongue symptoms to parathyroid gland involvement.

The organs most commonly affected by systemic AL amyloidosis include:

- The heart
- Kidneys
- Gastrointestinal tract (including the tongue and digestive system)
- Nervous system
- Skin

Parathyroid gland involvement is not something that appears in the current evidence around AL amyloidosis and tongue symptoms specifically.

That said, amyloid deposits can technically build up in many parts of the body, so it's always worth raising specific concerns like this with your care team. An endocrinologist may be able to evaluate parathyroid function if there's a reason to suspect involvement.

September 3

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