It's really tough to watch a loved one struggle, especially when they're already doing so much right. Even with tafamidis and vutrisiran on board, fatigue and breathlessness can still be persistent symptoms of amyloidosis. Here are some practical tips that may help with both.
For breathlessness, it may help to:
- Reduce Show Full Answer
It's really tough to watch a loved one struggle, especially when they're already doing so much right. Even with tafamidis and vutrisiran on board, fatigue and breathlessness can still be persistent symptoms of amyloidosis. Here are some practical tips that may help with both.
For breathlessness, it may help to:
- Reduce sodium intake to minimize fluid buildup
- Prop his head up with extra pillows while sleeping
- Take breaks during tasks — there's no shame in pausing and coming back to something later
- Ensure all prescribed medications are being taken consistently For fatigue, some energy-conserving strategies that other MyAmyloidosisTeam members have found helpful include:
- Sitting instead of standing for tasks like washing dishes or folding laundry
- Staying well hydrated and eating regularly throughout the day
- Taking short naps of 10–30 minutes when needed
- Setting a realistic number of tasks per day and not pushing beyond what the body allows
- Limiting caffeine for a few weeks to see if it makes a difference It's also worth speaking to his doctor about whether any medications in his current plan might be contributing to fatigue as a side effect. A doctor can adjust doses or explore alternatives if needed.
Talk therapy has also shown some promise in helping manage fatigue — it's not just about sleep, but about addressing the broader physical and emotional toll of living with amyloidosis.
Most importantly, if his breathlessness becomes sudden or severe, is accompanied by chest pain, an abnormal heart rate, swelling in the feet or ankles, or bluish lips or skin, seek emergency care right away.
13 hours ago
Join
Your Privacy Choices
