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How do you recommend proceeding witht finding someone in whom you have more trust/better relationship? Or do you not recommend doing anything?
I would seek another cardiologist. With having this disease, we need to have faith in our doctors, and be able to feel comfortable asking questions as well as expressing how we feel. Like Steve2 says you have to stand up for yourself ! I agree 100% with that. It's our fate, we have the right to know what's being done, how, why and what outcome should be expected. If you're not feeling that, it's time to change the doctor.
Trusting your cardiologist is genuinely important, especially when managing amyloidosis. A strong, open relationship with your doctor can make a real difference in how well your treatment plan works for you.
If the relationship doesn't feel right, here are some steps worth considering:
- Seek a second opinion — This is Show Full Answer
Find another one!
If I were in this situation, I would talk to other doctors on my team, asking them what they thought and asking for recommendations for another cardiologist.
I have been fortunate in that I have liked and trusted all of the doctors on my team: local cardiologist, amyloidosis cardiologist,family doctor, kidney doctor, oncologist, and team leader who is our amyloidosis expert.
100% agree with finding a new cardiologist that you do not question. In our case we have found that we are in the first few patients many of our Dr's have treated. My husband has AL Amyloidosis. Good compassionate Dr's are out there. You'll find the right one. Good luck to you.
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