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amyloidosis

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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Anyone On Vyndamax 61 Mg?

Anyone On Vyndamax 61 Mg?

How long? What was the benchmark? Have you been retested to see your effectiveness of this drug?

posted 6 months ago
  hug   useful? answer (2)
A MyAmyloidosisTeam Member said:

Galparrott I have seen you mention that you have wild type TTR. Tegsedi is designed to stop the progression of the polyneuropathy associated with hATTR. I do know several patients that are now on both… read more

posted 6 months ago
  hug (1)   useful? (2)

Can It Be Detected In An Echo Cardio Gram?

Can It Be Detected In An Echo Cardio Gram?

posted 8 months ago
  hug   useful? answer (1)
A MyAmyloidosisTeam Member said:

I had the definitive scan called a Cardiac PYP. You’ll probably have to get this at a hospital. Look it up then discuss w cardio!

posted 8 months ago
  hug (1)   useful? (1)

Covid 4th Shot

Covid 4th Shot

I am seeing people recommending a 4th shot - Has anyone else hearing this and what do you think?

posted 4 days ago
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