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Does Anyone Else Experience Painful Legs?
Both my legs hurt, although I have not injured them. And at night, I am often awakened by pain in one leg or the other or both and attempt to relocate them to another part of the bed or hanging over the side of the bed. Is this typical of cardiac amyloidosis? I was diagnosed with wild type in November 2023.
Is there any swelling? Maybe ask the doctor for some Gabapentin. It helped my neuropathy.
Memory Is F’D. Who Is My Contact In TSWASSEN. I Forget. Will Be Arriving On The Eighth. Please Respond So We Can Get Together.
Thx Jim. Returning from Virginia on 8th. Enjoy your God’s Country visit with your daughter. Sure miss Alberta and the Stampede. With her over 10 years, years of pure fulfillment.
Cheers Jim,
Ian
Hi I Was Diagnosed With Hereditary Amyloidosis Attr T60A Variant In June 2023 Receiving Vutrisiran Since October 2023 Also Have Neuropathy
Try, I know it’s hard, not to focus on your prognosis. Take it one day at a time.
How To Increase My Energy Level. Getting Excited Talking To Someone Will Cause Me To Pause For 20 To 30 Seconds To Speak Again
Have ATTRWT. I won’t be
depressed, however I’m starting to feel like I’m going downhill. My mind and memory are going…. I know “1 step at a time” but I’d like to start with 1 step. I’m still good though.
Thanks Stanford. God’s blessings
What To Expect After Chemo And How Long Does It Take To Regain Strength. Living With AL Amyloidosis.
After chemotherapy for AL amyloidosis, you can expect several things:
1. Side Effects: Chemotherapy can cause side effects such as fatigue, nausea, and hair loss. These effects vary depending on the… read more
How To Reduce Water Of The Body Naturally?
We can not drink more water otherwise water retention will increase
Have Wt Since Oct 23. Have Lost Muscle Mass. Anyone Been Able To Add Back Mass By Lifting Weights?
You sound like you have the tenacity to do what you set out to do. Baby steps my friend! You’ll get there!
After Diagnosed, Pacemaker, Carpal Tunnel Surgery, Not Able To Walk On Own, So Much Swelling, How Long Before It’s The End Time.
I hope you are medicated with a well-known Amyloidosis medication. Your life could be prolonged significantly if you follow your Drs, orders. Have faith in a power greater than yourself & trust him to… read more
In A Scientific Publication(June 23) , Maybe NIH, About Attrcm Trials On A Large Number Of Participants With ATTRcm, 3 Older Men Reversed It
Did Anyone Else Lose Their Sense Of Taste After Diagnosis Of Amyloidosis?
I’m feeling well just think I have lost my sense of taste. It may have been before I actually was diagnosed and before I started Vyndamax.
I sometimes feel like my sense of taste has changed. Most foods have a salty taste to me. Even those I know we have not added salt to.
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