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Has Anyone With Amyloidosis Had Progressions From Heart To Liver? Can U Describe, Svp?
Progression of AL amyloidosis from the heart to the liver can occur as amyloid proteins accumulate in multiple organs. In the heart, symptoms may include shortness of breath, swelling, or irregular… read more
How Long Does Edema Last After Treatment Or Is It Just One Of Those Issues Associated With CHF?
…but I have be using the seated elliptical and compression boots also. Those seem to help out.
So Things Changed Today As My Diagnosis Is ATTR Amyloidosis My Insurance Will Not Cover The $90,000 For 3 Months Of Vyndamax Ideas ?
I'm sorry to hear about your situation. Here are some options to help cover the costs of Vyndamax for ATTR amyloidosis:
- Medicare Savings Programs: These can help reduce out-of-pocket costs for… read more
What Is The Best Way To Manage Pain At Night?
Thank you. I will ask my doctor about it.
What’s One Thing About Amyloidosis That People Rarely Discuss But Should?
Yes Fotini it is serious whether you call it chronic or terminal. There should definitely be more education so doctors can diagnose it earlier and get better outcomes for their patients.
Anyone Reading A Good Book These Days?
Send Down the Rain by Charles Martin is the best book I have read in a while. He is also the writer of The Mountain Between Us which was made into a good movie.
I’m Looking For An Insurance Carrier That Will Approve Vyndamax , UnderMedicare Part D. Any Help Would Be Greatly Appreciated.
I have ATTR-wild type and doctor prescribed Vyndamax but I currently don’t have insurance and can’t afford the premium, so waiting for part D in January.
To find an insurance carrier that will approve Vyndamax under Medicare Part D, consider the following steps:
1. Check Medicare.gov: Use the Medicare Plan Finder tool to compare Part D plans and see… read more
When One Expects Amelioration In Condition After Starting Tafamidis? I Am Feeling Myself More Tired Lately.
My partner also had a lot more fatigue after Tafamidis and Patisiran. We don't know if it was from the treatment or the disease itself. He had more energy prior to the treatment.
Prior To Diagnosis Of Wild Type Approximately Two Years Ago, I Had Pulled My Biceps Approximately 11 Years Ago.
What treatments, exercises, Physio could I use to help alleviate the pain in my biceps??
Thanks very much,
Ian
Hi Ian, As for my bicepts I did nothing and just waited for the pain to go away. It did but If I remember correctly it took a year or more. The worst problem was that I also did a rotator cuff… read more
I Have A Third Week Chemotherapy Treatments Tomorrow.When Will I See Any Improvement Iñ Conditions
Chemotherapy can be effective in treating amyloidosis, but the timeline for seeing improvements can vary based on individual factors and the specific treatment regimen. Some people may start to notice… read more
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