Anyone On Vyndamax 61 Mg? | MyAmyloidosisTeam

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Anyone On Vyndamax 61 Mg?
A MyAmyloidosisTeam Member asked a question 💭

How long? What was the benchmark? Have you been retested to see your effectiveness of this drug?

posted July 17, 2021
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A MyAmyloidosisTeam Member

Galparrott I have seen you mention that you have wild type TTR. Tegsedi is designed to stop the progression of the polyneuropathy associated with hATTR. I do know several patients that are now on both drugs due to having neuropathy and cardiac symptoms.

posted July 17, 2021
A MyAmyloidosisTeam Member

I am on a trial for TEGSEDI® (inotersen) - and seems to be working - there are several other companies working on new drugs that look very promisning including the Crisper gene research

posted July 17, 2021
A MyAmyloidosisTeam Member

I was find but it caused liver problems and we told to stop

posted December 31, 2022
A MyAmyloidosisTeam Member

How are the patients coping?

posted August 21, 2022

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