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Well Jim7 I think you are doing great as I can only walk about 25 ft with a walker. All exertion causes rapid fatigue followed by bp drop. I have wild type.
I asked my heart specialist when I was diagnosed. He said “5-7 years, but I am not very good at this guessing thing”. I’m 2.5 years on now and I have always taken Vyndamax 61 mg. As far as I can tell, I was diagnosed early, which helps. I feel very much like I did 2.5 years ago. I have also read in this site about a guy from England who is doing well 10 years after diagnosis and he was also on Vyndamax 61. I’m 83 years old, so how long might I live, with or without Amyloidosis? Good question. At present, I’m in good shape and workout every day by walking a mile on a treadmill and go to a workout class once a week. I’ve been happily married for 56 years, I think, happy wife, happy life…….and maybe a tad longer…….lol!
Jim7 😎🇨🇦
There is no real answer, there are to many factors. You can't go with answers from the internet, just to many personal factors involved.
Yes it is very complicated. I’ve read that there are three blood tests that contribute to making an informed guess for people diagnosed. It gives a median number of years for the three stages. Which means half are above and half are below. So the numbers are a guess.
What is the life expectancy with wild-type ATTR amyloidosis?
Wild-type ATTR amyloidosis (ATTRwt) generally has a more favorable prognosis compared to hereditary forms of the condition. Since it develops slowly over time, people with ATTRwt often have a better outlook.
ATTRwt is typically diagnosed in men who are 60 or Show Full Answer
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