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Has anyone had this test to determne what the amyloids are doing? Jeffrey
I had these tests as part of my initial diagnosis. It was both interesting to actually see the twinkling of the fibrils around my heart and appalling just the same. This proved, along with cardiac… read more
I would like to be informed about this medicine.
great Lafreda, Blessings.
Jim4
My husbands EGFR dropped from 37 to 27 after 3rd chemo treatment, has anyone else experienced this?
We are extremely fortunate in the aspect that he is 100% VA disabled, so we pay nothing for treatment. I always say you can find something good in something bad! Ernie said thank you😘
Just diagnosed at 57 w/ AL. In process of getting two opinions.
Hate to hear about your back problems Vern. I. didn't know amyloidosis could do that. I wish you a pain free future.
Awww he just gets too excited. He just needs more training.
I don’t know about this whole thing. If you have amyloid in the bladder and your under treatment it should stop there. I don’t know if I… read more
Have in Bladder for year and a half, haven’t needed treatment!
Great Information Thank You So Much Paula!😎
I have be taking Tafamidis since March 2022 with no positive changes. I was thinking that due to my advanced heart failure I may not see any benefit by continuing to take Tafamidis.
You should stay on meds. It helped my brother a lot. He got a heart transplant las November after thanksgiving and he is doing so good now. I hope I get a prescription soon.
I have amyloids under my skin, a torn cuff rotator and issues with tendons at the back of my knees
Hi Shaz, lets hope you stay stable, l also had a carpal tunnel op way before being diagnosed with amyloidosis. Take care.
ratio switches between now normal (1.48) & from slightly elevated (1.71)
kappa elevated (from 24 now 22)
not being treated at this time
any comments about this "natural" minor reversal and any going forward ?
Joe it’s great that you’re right on top of this. Catching this early is key!
