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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
Denver, CO

I have so many signs and symptoms of Amyloidosis; from cardiac hypertrophy to ruptured bicep tendon to stiff heart to enlarged tongue, but a negative biopsy. Help??

December 24, 2022
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A MyAmyloidosisTeam Member

Thank you.

January 15, 2023
A MyAmyloidosisTeam Member

Cardiac MRI's (with contrast medium) and PYP scans (technetium 99) are very diagnostic when biopsies are negative. Blood work for light chains can diagnose a specific type also.

January 15, 2023
A MyAmyloidosisTeam Member

What did they biopsy? Have you had a PYP scan? Blood work?

December 26, 2022

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A MyAmyloidosisTeam Member asked a question 💭
Denver, CO