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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY

I’m on the fence about the stem cell transplant. I have amyloid in my heart and GI tract.

April 21, 2023
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Reactions
A MyAmyloidosisTeam Member

Thank you Teresa for pointing out CAR T. Let's all watch for this and see if it works. vern

July 7, 2023
A MyAmyloidosisTeam Member

Yes, take that as a win, happy for you.

July 6, 2023
A MyAmyloidosisTeam Member

I went through full chemo from April to October of 2022. From October 2022 till present I’ve been on maintenance chemo. Velcade 2x a month. Dara & steroids 1x a month. So far things have been going well with the chemo. The SCT takes such a toll on the body I really don’t think I want to go through it.

April 28, 2023 (edited)
A MyAmyloidosisTeam Member

That's a question many of us wold like to know the answer to. Keep us posted. vern

April 21, 2023
A MyAmyloidosisTeam Member

Well now they won’t do the harvesting unless you’re getting the transplant. They have a new procedure that they’re doing. It’s called CAR T cell. Much less daunting than the SCT. I was told that I’m not sick enough for it! I’m taking that as a win!!!

July 5, 2023

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