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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
East coast

I was diagnosed December 2022. I got treatment at Dana Farber in Boston. I think I was stage 3 a when diagnosed. I’ve been in remission for about two years. I just stoped the Clinical Trial I was on. Except for feeling tired by 2-3 in the afternoon, I feel like I’ve never been sick. Thank you Dana Farber. I don’t dwell on it but wonder if it will come back. My Oncologist said they will monitor me closely and there are even better medications if that were to happen.

September 21, 2025
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MyAmyloidosisTeam

Yes, it's common for AL amyloidosis to return after remission. While achieving remission is a significant milestone, the condition typically requires ongoing monitoring since relapses can occur. The good news is that when relapse happens, doctors can often treat it successfully using either the same medications that worked Show Full Answer

Yes, it's common for AL amyloidosis to return after remission. While achieving remission is a significant milestone, the condition typically requires ongoing monitoring since relapses can occur. The good news is that when relapse happens, doctors can often treat it successfully using either the same medications that worked before or newer treatment options. Your experience of feeling well except for afternoon fatigue is encouraging. It's excellent that you're being monitored closely by your healthcare team. The outlook for AL amyloidosis has improved significantly with newer treatments, and having achieved remission is a positive sign. Stage 3 patients who respond well to treatment, like you have, can often maintain a good quality of life with proper medical supervision.

September 21, 2025

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