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A MyAmyloidosisTeam Member asked a question 💭
New York, NY
May 20, 2023
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Answer Summary

Members shared positive experiences with Vyndamax for ATTR-CM, with many reporting stable heart conditions and expressing gratitude that the... Read more

Members shared positive experiences with Vyndamax for ATTR-CM, with many reporting stable heart conditions and expressing gratitude that the medication prevents new amyloid deposits, even though it cannot reverse existing damage or cure the disease. Several members emphasized that after two to five years on the drug, their cardiac evaluations have remained stable, and many noted receiving free medication through Pfizer's patient assistance program. A recurring theme was acceptance and resilience, with members acknowledging uncertainty about what their condition would be without treatment but feeling fortunate to have more good days than bad and to still be here.

A MyAmyloidosisTeam Member

I have been taking vyndamax61 for 3 years and I think it is helping. Heart is weak but things seem stable otherwise
Just hang in there
Richard 5

March 24, 2024
A MyAmyloidosisTeam Member

Hi Richard. I have been on Vyndamax for 5 years, free from Pfizer. I am 88, still hanging in there. Al

November 1, 2023
A MyAmyloidosisTeam Member

I have a similar history with using vyndamax61
Heart evaluations are stable for over 2 years
Still hoping for a new drug to remove the amyloid deposit but may be gone before that happens

August 13, 2023
A MyAmyloidosisTeam Member

Richard5
3 years now. I'm happy with both the drug and the manufacturer Pfizer. Both seem to have come through for me. Its been over 2 years now and though I do not have a heart specialist in Amyloidosis things have not blown up yet. My heart has had ventricular ectopy problems but they seem to be going away leaving AFIB. I'm willing to accept that without proof. You can only look at your history and see if you've progressed or are still alive. I literally don't know where I would be without it. Roy2

August 13, 2023
A MyAmyloidosisTeam Member

Same here my friend. 3 years too.

March 24, 2024

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