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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
April 4
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A MyAmyloidosisTeam Member

Not taking that med, just not the right one for me. We are all different and it may have been of some benefit for me for the 6 weeks I took it. The risk/reward analysis by you and your doctor can be a real challenge with this med. Good luck with your decision process and your journey

April 5
A MyAmyloidosisTeam Member

I took it, I survived. I may have absolutely needed it. My ATTR-CM is one of my issuès.

April 5
A MyAmyloidosisTeam Member

I do have plenty of side effect stories but I respect my obligation to be positive on this site as well as everything in life. Study up on this subject, consider patients history with side effects, but remember everyone is different. Good luck on you journey

April 5
A MyAmyloidosisTeam Member

Ask pharmacist

April 5
A MyAmyloidosisTeam Member

Thanks for sharing that. His Afib returned after an ablation over 2 years ago, so more meds on the shelf now. Are you still taking it?
Good to hear your positive story!
In Texas too.

April 5

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A MyAmyloidosisTeam Member asked a question 💭