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A MyAmyloidosisTeam Member asked a question 💭
Evans, GA

I have HATTR Amyloid resulting in my having Cardiac Amyloidosis and Peripheral Neuropathy. I am taking Vyndamax and soon to start Amvuttra (spelling) could these be the cause of my weight loss.

August 26, 2023
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A MyAmyloidosisTeam Member

Zofran really helps with the nausea and it’s also constipating so that helps me with the diarrhea

August 27, 2023
A MyAmyloidosisTeam Member

Thank you Theresa yes I believe it is in my GI tract have had extreme bouts of diarrhea and constant nausea. I am not eating well - skip meals. I do use meal replacements at times still not gaining weight. I will ask my doctor about malabsorption she maybe to help. Thank you for the information.

August 27, 2023
A MyAmyloidosisTeam Member

How is your eating? Do you also have it in your GI tract? It might be a malabsorption problem. I finally stopped losing. I have it in my GI tract and because of that chronic diarrhea. I went from 155 down to 99. I settled in between 105 & 110 depending how bad the diarrhea is that week.

August 27, 2023
A MyAmyloidosisTeam Member

I agree, Zophran is the ticket for nausea. If you can keep it down they work within 5 min. Fortunately they are tiny yellow oval pills.

December 5, 2023
A MyAmyloidosisTeam Member

My wt goes up and down like a thermometer ... I went from 194 to currently 154 and I am 5'6 I don't have to exercise..I have no appetite at all but like I said I have reported this and my friends and family noticed but the doctors didn't

December 11, 2023

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A MyAmyloidosisTeam Member asked a question 💭
PCB Florida 32413

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