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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My EF has been declining and I am wondering what chance there is of improvement. I have wild type.

February 10, 2024
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A MyAmyloidosisTeam Member

I’m wt too. Been on Vyndamax since Sept. 2023. That was the last time I had a check up. We are traveling and don’t have access to the last report to quote. When i first started on Vyndamax i was lucky to walk around our small block, <500 steps. My average for the past seven days was 5,558 steps per day.
I’ve noticed an improvement lately. I have appointments in the next two weeks.

February 10, 2024
A MyAmyloidosisTeam Member

Impressive!

February 13, 2024
A MyAmyloidosisTeam Member

Thanks!

February 10, 2024
A MyAmyloidosisTeam Member

Mi Mary, At my last testing my left was 54 and right was 59. That was on October 12th. I started Vyndamax the first of December and I get measured again on February 27th so I'll let you know.

February 10, 2024
A MyAmyloidosisTeam Member

Gosh ! Glad to hear you are doing so well. Let me know about your EF if you find out anything at your appointments.

February 10, 2024

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Hawthorne, NJ