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A MyAmyloidosisTeam Member asked a question 💭
Bay City, MI
February 11, 2024
 · 
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A MyAmyloidosisTeam Member

I had tremors but they are so much better as is my pain and neuropathy. I have been doing acupuncture, neuromed electrical therapy, and cold laser therapy. I have had 68 treatments so far. I have also started infusions for my neuropathy. I had no feeling at all from my calf down to my toes and now I am getting feeling back. Also, the numbness in my hands is so much better. I am still taking Vyndamax and I have also started aqua therapy twice a week and land therapy once a week. We are praying this will help me get back my ability to walk. I encourage everyone to look into different therapies that could possibly benefit them. ❤️

February 22, 2024
A MyAmyloidosisTeam Member

No that’s one thing I didn’t have, but did have carpal tunnel surgery in both hands.

February 11, 2024
A MyAmyloidosisTeam Member

Yes and do not know cause yet. Tremors are so bad sometimes I have to put cup down to drink without slinging coffee all over. I think it’s the glycopyralite I take , but not sure. I think in combination with dehydration, or maybe just dehydration. Also taking Lasix which complicates the dehydration issue. It’s either walk the line with water intake or swell up. There is no winning here, just prolonging the inevitable. But you have to fight every day and stay positive, or your mind will eat you alive. Every night I pray I will awake to read a cure has been found. And if we can hang on long enough…

February 11, 2024
A MyAmyloidosisTeam Member

Comes and goes sometimes troubling sometimes minor.
Hands slowly growing numb...tingly...trigger finger in thumbs and one other finger in both hands. Pains in arms especially right arm wakes me up frequently.
Thank God for a wonderful wife and yound energetic dog😉😇
Thank God for The Christ who truly comforts me.

February 11, 2024
A MyAmyloidosisTeam Member

My carpal tunnel is getting worse. I have to stop what I'm doing sometimes because the stinging and tingling is so bad.

February 11, 2024

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A MyAmyloidosisTeam Member asked a question 💭
Bay City, MI